Chris sent this to me yesterday. You will all be as entertained, hopeful, inspired, and deeply moved, as I was. Keep fighting the fight Chris, my brother, my hero.
"Just catching up. Saturday we just sat around went to the pool with the kids the weather was beautiful. Frank and I left the pool early went back to the condo. Drank about 50 iced teas together. Poor Tanya is gonna have to start brewing in the bathtub.lol Braden bought a tablet that waiters Use to take someone's food or drink order. He waits on us and fills our ice teas. Brady charges a penny a glass of tea. He is so entertaining. Sunday frank and I were sitting around the condo doing nothing. We decided to go on an adventure. I know I said I wouldn't hit the streets but we did. Down hills, up hills, over curbs. I need 4 wheel drive on that chair.lol we made it to a bagel shop. You wouldn't believe how jacked up all the sidewalks and streets are here. Nothing is handicap accessible. It was a great workout for me. Frank looked a little spent. Lol he had sweat pouring off his face after pushing me up the last hill to the condo. It felt good to do that. I felt good. Today I woke up feeling crappy. Struggled through physical therapy. Lou vina had me transfer to a round punching bag and balance for an hour. Arm movements and exercises and the key is not to fall off. She tells me to do something and I tell her,"I can't I'm gonna fall." now I just say the hell with it and just do it. I trust her. The thing with a SCI is you never know how your gonna feel when you wake up. Some days you feel drained and can't get moving. You just feel sick. Today was that day. I struggled to get through the day. Got my intrathecal injection bout 2 o'clock also today. I wasn't as nervous this time. I think i was the first time just because of the anticipation. Jen and frank waited in the waiting area. As soon as I came out after the injection I told Jen I felt like a fist in my lower back. Not real hard just a slight sensation. Dr. Paz told Jen and I that my bone marrow procedure went very well. He also told us that they got a good draw of adult stem cells from me. Thanks to being young and in good health he told us. Hes gonna give us the results on paper. It lifted my spirits instantly. All it takes is some good news to change your mood. I just keep on trucking and hope for the best. Sometimes I have moments where the reality of my life hits me and I panic for a few minutes. Feelings about being trapped in this chair for life. The feelings don't stay long. I'm pretty upbeat. I try sometimes just to stand up for hours or even move my legs. Sometimes my leg twitches when i think about moving it. It's just delayed. I just try to move what can't move. Feel like I'm a Jedi trying to use the force.Lol Just some random thoughts. I just keep telling myself Someone has always got it worse. No side effects tonight. Hopefully wake up tomorrow feeling better."
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