I just
received my first umbilical cord injections, intrathecal and IV. My legs
tingled and burned all night. I have tingling in between my toes as well.
Therapy is like boot camp. I am at a new place called Bioimagen. My therapist’s
name is Josalyn, Jose for short, and she don’t play no games! And when
you do a set of 25 reps you get about 30 seconds to catch your breath until the
next exercise. I can count and sometimes her 25 is 35. I am so sore, sore
as hell. My back has been aching where my rods are located. She can
squeeze more abdominal workouts in one hour than any one on earth. I feel
like I'm back in high school waiting for the bell to ring to dismiss class. But
it's good. A lot of my motivation comes from being frustrated and
mad. I have learned how to tap into those feelings and turn them into
good energy. My first day at therapy, in the midst of 300 sit-ups, I wondered
how the hell my life ended up this way. You get these moments when you
think that all this can't be real. Like stop this train I want to get off type
feeling. Crazy. But it is what it is so you got to move if you want to
live. I have some moments like that then I snap out of it and go. They
got weights strapped to my arms while I'm balance sitting-- throwing pillows at
me to catch and throw back to a few therapists standing around me. My balance
is great. My second day of therapy was hard after getting those
injections. My body just could not get moving. I was so exhausted from
the stem cells. I talked to the doctor and she said that it's normal and
not to worry, something with the umbilical cord cells and my immune
system. I was just more tired than I ever felt in my life. I just
wanted to close my eyes and sleep on the mat. My drill Sergeant Jose, (who
doesn't speak much English at all) said, "You lazy today." I popped
up like a bat out of hell and said “let’s do this.” Then I had to change
the mood for the rest of therapy. The mood in there was like being at a
funeral. I started practicing my bad words in Spanish while we exercised
and before long, I had the whole room cracking up. Now they all think I'm
crazy. Now I keep them laughing with just the silly things I do.
My injections were yesterday. I don't
know what to expect but here's how I feel right now. My hip flexors are
really active. I had those since the last treatment but they are just really
active but it's not a fine controlled motorized movement. They trigger and my
hips thrust and sometimes when I'm laying flat my leg will just come up and
bend at the knee. My left is more active than my right. My butt and
legs just tingle. They don't hurt. You can't feel them but you just
know they are there. It’s really hard to explain. The tingling helps me
mentally visualize where I am paralyzed and locate it in my head. My
shins tingle. It tingles above my knees too. It's a constant
tingle, kind of like your ass feels after you get done push mowing for a long
period of time! I got IV umbilical cord on Friday and therapy and then
I'm off until Monday. I received good news about my bone marrow extraction!
The doctor said he went three times because my counts were always low in the
past. They don't have the exact count yet, but said I have enough marrow
for the next time and possibly a third if I have progress! That is great
news considering my counts have been just enough for that particular time.
I was excited to think about the next trip and possibly the one after so I
wouldn't have to repeat that procedure.
Today's
therapy was crazy. The construction workers the night before broke the elevator
which we use to get to the second floor of the therapy gym. They decided
to build ramps that night to get all the patients to therapy. All I got
to say is that if Frank Ross was here he'd be fighting some Panamanians!
Steeper than you can imagine! Three separate staircases. 5 men to get me up the
ramps. I'm probably the heaviest patient here right now at 200 lbs. I
appreciate the effort but I told them if the elevators broke next time don't
come pick me up. I got some video on my phone. I made this man I met who’s
here with his wife film it. I had a smudge on my iPhone lens so it's
blurry. I'm mad about that! It was a You Tube special!
I got a
second intrathecal umbilical injection today at 4. I spent an hour
afterwards doing stand- up comedy at the clinic. I kept everyone
entertained. We had dinner in tonight. I am going to try and get some
sleep. We are going to take the kids to the Caribbean tomorrow. A friend in Panama offered to drive us and
spend the day with us. One week down and an important week lay ahead. My
spasticity has quieted down and I am now just waiting on something new with my
body.
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